Comments on: Getting Over the Fear

By: Kayla

Kayla — Mon, 23 May 2011 07:07:54 +0000

My baby brother died from SMA Type 1, it was 8 years ago and he was almost 4 months old. I still miss him and I am still not “over it”. This story had me crying. <3

By: shaina rappoport

shaina rappoport — Sat, 19 Feb 2011 16:53:42 +0000

audra-
i loved reading this… so well written… so true…thanks for sharing..

shaina rappoport

By: Tony Burks

Tony Burks — Fri, 18 Feb 2011 21:28:25 +0000

Audra, What an incredible post.
What continues to amaze me is the similarities with SMA kids and parents. As I read this it was like it was coming from inside my own head. We are currently in that scared mode, scared of getting out, scared of an episode, scared of leaving the comforts of equipment and electricity, mostly scared of what is to come. We try to dance as well. We live by the saying; “Life is not about waiting for the storms to pass, It is about learning to dance in the rain”. Unfortunately it rains REALLY hard in the SMA world.
I can’t say I understand where you are right now, but it hurts to know that I will.
Certainly Andy would want you to dance every chance you get. I hope you do.

By: Laurie

Laurie — Fri, 18 Feb 2011 21:15:17 +0000

I can’t express in words just how blessed I feel to have you in my life. You are more than my friend, you are my family! Love you!

By: Victoria Strong

Victoria Strong — Fri, 18 Feb 2011 18:00:33 +0000

Dearest Audra, This is such a beautiful post. I think it is interesting how Bill’s post made you think and your post in turn has made me think. Thank you for your honesty. You always inspire me!

By: Getty Owl

Getty Owl — Fri, 18 Feb 2011 05:59:01 +0000

What a beautiful post. Thank you so much for sharing with the world. You and Bill Strong are inspirations for us all.