Comments on: The Myth of “Getting Over It”

By: Michelle Clancy

Michelle Clancy — Mon, 11 Jun 2012 05:45:32 +0000

Audra,

THANK YOU! Thank you soooooooo much for telling the world the words I could never say but ALWAYS felt since I lost my two babies to SMA also. Prayers girl. <3

By: Dana

Dana — Sun, 23 Oct 2011 02:25:49 +0000

Audra,
You said it all. Isn’t it a wonder that we are still alive? Reading your words brings back to life so many feelings and memories. Sometimes I still marvel at our ability to survive the death of our babies and wish that others realized how truly difficult that is. It’s been over 3 years for me now and I do want to say for you mommies who are in the depths of the agony, please know that it will change. It will not always be hard to breath, hard to live and hard to wake up every day. Just please remember that. It never goes away; but it will change.

By: Miranda

Miranda — Thu, 11 Aug 2011 05:53:12 +0000

Thank you… I felt as if I was not normal for feeling the way that I have… I am stuggling at my worst right now… not knowing why my son Kasey was taken from us… it has been 2 months since my precious little angel went to Heaven… it seems like the days are getting harder and not ever going to get better. Kasey died with heart complications. I am at the stage of guilt and blame right now… So thank you! I appreciate your words… God Bless!

By: Dannete Lyden

Dannete Lyden — Sat, 09 Jul 2011 23:44:16 +0000

Thank you for sharing the same thoughts that go through my mind on a daily basis. I don’t think you can ever really get over the loss of a child. Your life will just never be the same. My daughter Aubrey also had SMA type 1 and passed away from a short battle with pneumonia on April 24, 2011. That was also Easter Sunday. She was my first and only child and I still struggle everyday to understand why this is happening to me. I know I will really never have an answer. My prayers are with you and your family.

By: Mike Van De Loo

Mike Van De Loo — Sat, 11 Jun 2011 14:16:52 +0000

Audra – Thank you for this powerful statment. I recently joined your side of the bridge when our daughter Ciara passed away from SMA type 1 in April 2011. What you said is exactly how I feel. Ciara is in my heart and unfortuantely that is the way things are going to be.

By: Dorothy

Dorothy — Mon, 23 May 2011 13:08:59 +0000

You’re incredible Audra, thanks for putting into words what most of us can not. I stand beside you on the “other side” of that blown up bridge. And yes Corinne, it sucks!

By: Stacie Edwards

Stacie Edwards — Mon, 23 May 2011 03:03:14 +0000

I’m so sorry for your loss Audra. I can not relate to you in regards to losing your son, but I do very much relate to the part where you wrote about the bridge, and crossing over. I often feel that way in just becoming a family who has SMA kiddos. People try to understand, but unless you’re the parent of that child they never fully get the whole picture. Thank you for that image, it’s what I’ve been thinking and just never heard it like that.

By: Corinne Painter

Corinne Painter — Mon, 23 May 2011 02:01:18 +0000

Sigh…..how to describe any better than you just did? I can’t. Thank you, as always, for putting the perfect words on our situation. I just had a moment like that- a “should have.” I have a pic of Chloe on my nightstand…we were at Disney during Christmas 2007. When we could take her somewhere without problems. I remember that beautiful moment being painful because of SMA. All the other families there had their amazing babies with them. And none of them were going to die. I never enjoyed anything completely because of that damn disease and wondering when…when…is she going to die. I am forever scarred.
I’m sorry you are, too. This plain sucks.

XOXO
Corinne

By: Cass

Cass — Mon, 23 May 2011 00:51:55 +0000

To your point about your new normal and never “getting over” it–so true. I try to keep faith that a cure will be soon found, but I don’t look forward to the journey I’m afraid my family will have to take someday, the same journey that yours has endured.

What a great writer you are. I’m so sorry for Andy’s passing, and for any of our SMA kids who pass–but you sure have a gift for expressing your feelings in writing. Well said.

By: Robin

Robin — Sun, 22 May 2011 21:23:36 +0000

Thanks for the words Audra. We spent Mother’s Day unable to talk about the elephant in the room but we all knew that the hole in our hearts would always be there. When we are blessed again, and we know we will be, there will always be a special part of our hearts for the one that never was. Love never dies.