Monthly Archives: September 2010

The Little Things

It’s been more than 15 months since Andy passed away due to aspiration pneumonia caused by spinal muscular atrophy (SMA). On most days, I feel like I’m getting better at coping with the life he left behind. Thanks in large … Continue reading

Posted in Family News, News | 5 Comments

This is SMA

Today, I took our daughter Lucy to her two-month “well baby” check-up at the pediatrician. She was weighed and measured, her milestones were checked, and several vaccines were administered. We laughed as she showed off her head and neck control … Continue reading

Posted in News, SMA News | 3 Comments