Monthly Archives: August 2011


Sometimes, in the very early hours of the morning when everyone is still asleep, I think I hear our bedroom door creak open slightly, followed by soft footsteps on the floor. I wonder if you are coming to crawl into … Continue reading

Posted in Family News, News | 8 Comments

The Power of Awareness

August is recognized internationally as Spinal Muscular Atrophy Awareness month.  It’s a time when families affected by SMA come together as a unified front, regardless of the specific organizations we support or the philosophies we hold, to raise public awareness … Continue reading

Posted in News, SMA News | 4 Comments