Treasure Tavern Donates $2,250 to FSMA

Your votes continue to make a difference! The Greater Florida Chapter of Families of SMA received a $2,250 check on Saturday, July 10, from the Treasure Tavern in Orlando for winning their Grand Opening online voting contest.  Thank you to our friends, family and supporters for voting in this contest during the past month! And, please check out the Treasure Tavern at

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One Response to Treasure Tavern Donates $2,250 to FSMA

  1. J says:

    have u met Kendra and Ryan? They lost their beautiful princess Makenzie Rye Webster to a form of SMA called SMARD when she was just shy of 5 months old on December 13, 2009. MRW’s birthday just passed. I think you both may benefit from a friendship…

    Your son was an absolute doll. I am sorry for your loss and I am encouraged by your desire to continue to fight for his cause! I have been so touched by all the SMA families I have come across since “meeting Kendra, Ryan and Makenzie” via their blog.


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