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Category Archives: News

Happy 15th Birthday, Andy

Dear Andy, I haven’t written a birthday letter to you for the past few years. I tried, but the words didn’t come easily. Today, on your 15th birthday, I thought I would try again. I’m supposed to be working now, … Continue reading

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A Decade Without You

“Dusk is just an illusion because the sun is either above the horizon or below it. And that means that day and night are linked in a way that few things are there cannot be one without the other yet … Continue reading

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Memories of You

For as long as we live, they too will live, for they are now a part of us as, We remember them.” – Sylvan Kamens & Rabbi Jack Riemer Dear Andy, I remember the day you were born like it … Continue reading

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Our Family Tree

It was hot and muggy the day that you left us, but I only remember feeling cold. I know that I was in shock, but the chill I felt seemed fitting. I was sure in those first raw moments of … Continue reading

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Always in Our Hearts

It was a sleepless night in the pediatric intensive care unit of the hospital, but your daddy and I didn’t realize it would be your last. We knew that you had taken a turn for the worse, but didn’t understand … Continue reading

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A Letter to Andy on His 8th Birthday

Dear Andy, Today is your 8th birthday, and we’re having a party – in part to mark the first anniversary of my business and also as an excuse to invite our friends and family over. It’s a reason to get … Continue reading

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Weathering the Storm

Dear Andy, It’s storming outside as I sit here, trying to find the words for my annual letter to you. Torrential rain lashes against the windows. The sky is foreboding and gray, punctuated with angry flashes of lightening. Thunder booms … Continue reading

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Seven Years

Dear Andy, Today is your seventh birthday – a celebration of the day that you were welcomed into the world and the start of our family. Our house should be filled with your little friends, birthday presents, and balloons. You … Continue reading

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Fight

You get the diagnosis. Your child has spinal muscular atrophy. Until that moment, those words – and the letters SMA – were meaningless to you. Now they are your greatest enemy. You prepare yourself to fight. You dig in, past … Continue reading

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A Special Butterfly

On July 25th, we lost a friend. Gwendolyn Strong was – and always will be – such a huge inspiration to us. Her family was always there for ours, standing beside us in our despair and celebrating our triumphs. When … Continue reading

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Another Thursday, June 4

Dear Andy, Today is Thursday, June 4. It’s the first “official” day of summer vacation for your little sister and brother. The sun is shining, and the day looks like it will be a hot one. Daddy and I are … Continue reading

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A Story of Birthdays

Dear Andy, Your little brother Will recently started pointing to your picture on our family room wall and saying, “Baa-bee?” I tell him that the baby in question is you, his big brother. Not understanding, he points to his own … Continue reading

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Happy Holidays 2014

From our family to yours, we wish you a holiday season filled with happiness and hope…and maybe a little snow. Love, The Butler Family – Alan, Audra, Lucy, Will & Our Angel Andy

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A Letter to Andy on His Fifth Angel Day

“At any given moment, you have the power to say ‘This is NOT how the story is going to end.’” Dear Andy, I’ve been writing – and rewriting – this letter to you for weeks, as I counted down to … Continue reading

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Five Years Old

Dear Andy, Today is your fifth birthday. It’s a Wednesday, which means your father is at work and your little sister Lucy is at pre-school. Your baby brother Will is playing at my feet. I’m sitting in the rocking chair … Continue reading

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Andy’s Army Receives An Honoree Award!

We are thrilled to announce that we received a Legacy Honoree Award, on behalf of Andy’s Army, at the January 6, 2014, Live Your Legacy Summit! Here we are accepting this prestigious award with Summit host and organizer, Aurea McGarry. … Continue reading

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Living Andy’s Legacy

Wednesday, January 8, would have been Andy’s fifth birthday. It’s hard for me to comprehend that it’s been five years since he entered this world – and left it so abruptly. After all of these years, the pain of his … Continue reading

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Merry Christmas and Happy New Year

Wishing you a Merry Christmas and a Happy New Year…from our family to yours. With love, Alan, Audra, Lucy, Will and Our Angel Andy

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Lanterns for Andy

Today is the Annual SMA Candle Lighting, which traditionally takes place on the second Saturday in August. Across the globe, people light candles to remember those lost to SMA and to honor those still fighting. At sunset, our family – … Continue reading

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The Summer of Discontent

There are so many things that I should be doing right now – the laundry, dusting, vacuuming, and dishes among them – but Will is sleeping, Lucy is at school, and this rare moment of solitude is mine. The house, … Continue reading

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