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Category Archives: SMA News

Fight

You get the diagnosis. Your child has spinal muscular atrophy. Until that moment, those words – and the letters SMA – were meaningless to you. Now they are your greatest enemy. You prepare yourself to fight. You dig in, past … Continue reading

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Andy’s Army Receives An Honoree Award!

We are thrilled to announce that we received a Legacy Honoree Award, on behalf of Andy’s Army, at the January 6, 2014, Live Your Legacy Summit! Here we are accepting this prestigious award with Summit host and organizer, Aurea McGarry. … Continue reading

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Lanterns for Andy

Today is the Annual SMA Candle Lighting, which traditionally takes place on the second Saturday in August. Across the globe, people light candles to remember those lost to SMA and to honor those still fighting. At sunset, our family – … Continue reading

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Remember Andy This August

A few weeks ago, I was sitting in a rocking chair with my infant son Will on my shoulder and my three year old daughter Lucy on my lap. We were “snuggling up,” in Lucy’s words. I looked down at … Continue reading

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In the Family

The first time I heard the words “Spinal Muscular Atrophy,” my infant son Andy was being diagnosed with one of the most severe forms of the degenerative disease. My husband and I were shocked to learn about SMA and that … Continue reading

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Raising SMA Awareness This August

August is Spinal Muscular Atrophy (SMA) Awareness Month. It’s that time of year for us to remember those we’ve lost to this insidious disease, like our sweet Andy, and to honor those who are continuing the fight. And, it’s that … Continue reading

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The Power of Awareness

August is recognized internationally as Spinal Muscular Atrophy Awareness month.  It’s a time when families affected by SMA come together as a unified front, regardless of the specific organizations we support or the philosophies we hold, to raise public awareness … Continue reading

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August is SMA Awareness Month

The month of August has been designated as “SMA Awareness Month.” Several activities are planned throughout Tampa Bay, Florida, (and throughout the nation) to promote SMA awareness, to honor our angels and warriors, and to raise funds for a cure. … Continue reading

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Join Team Andy’s Army at the 2011 Greater Florida FSMA Walk-N-Roll!

On Saturday, November 19, 2011, “Andy’s Army” will walk together at the FSMA Greater Florida Chapter’s Third Annual Walk-n-Roll in memory of Andy Butler and in support of a cure for Spinal Muscular Atrophy (SMA). The event will take place … Continue reading

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What You Need to Know About SMA Carrier Testing

My husband and I conceived our second child just four months after we lost our first child to spinal muscular atrophy. The decision to try to have a baby so soon after our son Andy’s passing was a difficult one. However, we hated being … Continue reading

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Getting Healthy

I am an emotional eater. So, it’s no surprise that I gained a lot of weight as we dealt with our son Andy’s diagnosis with SMA and his passing in 2009. Then, I gained even more when I got pregnant … Continue reading

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Amazing Friends

Recently, a friend of mine from high school, Deb Shoman Young, contacted me about a fundraising idea.  After having two beautiful, healthy baby girls, she is ready to get back in shape…and she’d like to get sponsors for her weight … Continue reading

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This is SMA

Today, I took our daughter Lucy to her two-month “well baby” check-up at the pediatrician. She was weighed and measured, her milestones were checked, and several vaccines were administered. We laughed as she showed off her head and neck control … Continue reading

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Join Team Andy’s Army at the 2nd Annual Greater Florida FSMA Walk-N-Roll!

UPDATE: With approximately 70 walkers and donors, Andy’s Army surpassed $2,300 in contributions to the FSMA Greater Florida Chapter’s Second Annual Walk-n-Roll, making our team the top fundraiser! Overall, the event raised more than $23,000 to fight SMA, and we … Continue reading

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July is a Month of Miracles

July was a wonderful month for our family and for our cause! Our daughter, Lucy Catherine, was born on July 15, 2010, at 8:08 AM.  She weighed 10 pounds, 5 ounces at birth and measured 21.5 inches. We named her … Continue reading

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Treasure Tavern Donates $2,250 to FSMA

Your votes continue to make a difference! The Greater Florida Chapter of Families of SMA received a $2,250 check on Saturday, July 10, from the Treasure Tavern in Orlando for winning their Grand Opening online voting contest.  Thank you to … Continue reading

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Thank you for “Spreading Your Warmth”

Thank you all for voting for Andy’s Army in the Sweatshirt Blanket “Spread Your Warmth” campaign. After a tight competition, we are thrilled to let you know that both Andy’s Army and CranioKids will be awarded prizes!!! Two great causes … Continue reading

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$1650 Raised at Greater Florida FSMA “Friends and Family” Picnic

Thank you so much to everyone who participated – and donated – in the second annual Families of Spinal Muscular Atrophy (FSMA) of Greater Florida Family & Friends Spring Picnic Fundraiser on May 22. It was wonderful to spend such … Continue reading

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Stop SMA’s Grant Funding to Support Dr. Swoboda’s Research

Every day in March, members of Andy’s Army took a few moments to place an online vote for Stop SMA  in the $250K  Pepsi Refresh Project. Thanks to your support, Stop SMA now is an official grant recipient. The non-profit … Continue reading

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Andy’s Army Featured in TV Documentary

The producers of the award-winning “Florida Crossroads” documentary series, which airs statewide on PBS stations, dedicated a half-hour episode of the series to telling Andy’s story, along with the stories of several other families in the Tampa Bay Area who … Continue reading

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