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Monthly Archives: May 2011

The Myth of “Getting Over It”

On May 17, 2011, Oprah Winfrey featured author James Frey on her show.  During the interview – which mostly dealt with reconciling the controversy over his book “A Million Little Pieces” – Oprah mentioned that his family suffered a loss … Continue reading

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What You Need to Know About SMA Carrier Testing

My husband and I conceived our second child just four months after we lost our first child to spinal muscular atrophy. The decision to try to have a baby so soon after our son Andy’s passing was a difficult one. However, we hated being … Continue reading

Posted in Family News, News, SMA News | 20 Comments

Celebrating Mother’s Day

I celebrated my first Mother’s Day as an expectant mom on May 11, 2008. My husband Alan and I were in Ireland for a friend’s wedding, and I was six weeks pregnant. We were so excited about our baby-to-be. My … Continue reading

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When Mother’s Day Hurts

For me, Mother’s Day is very bittersweet. As much as I look forward to celebrating my first Mother’s Day with my daughter, my heart aches that I won’t be able to hug and kiss both of my children on that … Continue reading

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