Your votes continue to make a difference! The Greater Florida Chapter of Families of SMA received a $2,250 check on Saturday, July 10, from the Treasure Tavern in Orlando for winning their Grand Opening online voting contest. Thank you to our friends, family and supporters for voting in this contest during the past month! And, please check out the Treasure Tavern at http://www.treasuretavern.com/.
Archives
-
Most Popular Posts
Memorial Tributes
SMA Network
- 4 Annie Girl
- A Song in This World
- ACT for SMA
- Allison Kerns' Website
- Amanda Cardoza's Website
- Andy's Army on Facebook
- Andy’s Army at Causes.com
- Annabelle Rose Foundation
- Avery's Bucket List
- Blankets 4 SMA
- Brooke and Brielle
- Brooklynn's Journey
- Byrds for a Cure
- Callie Golden's Website
- Christian's Fight
- Climb 4 SMA
- Cole's Quilts
- Emersyn's Paige
- Emma Grace's Website
- Families of Spinal Muscular Atrophy
- Fight for Owen
- Fight SMA
- Fighting for Damion
- For Elise
- For the Love of Jake
- Georgia's Journey
- Getty Owl
- Hope and Light Foundation
- Hope for SMA
- Inside SMA (Products, Tips and Advice)
- Jadon's Hope
- Little Flower Violet
- Lucy's Hope for a Cure
- Lyla Mertz Foundation
- Miracle for Madison
- Nora Gooden's Website
- Ramblings from an SMA Dad
- Scarlett's Hope
- SMA and Nutrition
- SMA Angels Charity
- SMA Foundation
- SMA Medical Supply
- SMA Support
- SMAspace
- Sophia's Cure
- Sweet Baby Zane
- Team Ben
- Team Kennedy
- The Alex Camwell Tribute Fund
- The Claire Altman Heine Foundation (Carrier Testing Information)
- The International SMA Patient Registry
- The Jeffrey Journey
- The Jennifer Trust
- The Jocelyn Paige Lee Foundation
- The Suite Life of Lucy and Ethel
- theGSF (Gwendolyn Strong Foundation)
- Through Eli's Eyes
- Trevor's Cure Dat Foundation
- Wishing for Elephants
- Zane's Run
have u met Kendra and Ryan? They lost their beautiful princess Makenzie Rye Webster to a form of SMA called SMARD when she was just shy of 5 months old on December 13, 2009. MRW’s birthday just passed. I think you both may benefit from a friendship…
Your son was an absolute doll. I am sorry for your loss and I am encouraged by your desire to continue to fight for his cause! I have been so touched by all the SMA families I have come across since “meeting Kendra, Ryan and Makenzie” via their blog.
livingformrw.blogspot.com
&
kendraandryanwebster.blogspot.com
also,
byrdsforacure.com